Inclusion is the Reason My Son Started Walking

Posted: 7 years ago

Inclusion is the Reason My Son Started Walking

down syndrome preschool inclusion

This Down syndrome blog post is about our first experience with inclusion. Down syndrome preschool inclusion

Earlier this year I felt a kind of panic well up inside of me that I had never experienced before. I was worried and anxious about my son Anderson’s development. Anderson has Down syndrome.

I knew Anderson was capable of walking, but he didn’t want to. He hit a plateau with speech and occupational therapy was his least favorite.

I had just completed six months of advocacy courses through Partners in Policymaking. I wrote an article on Inclusion that went viral and yet because I was a stay-at-home mom, it didn’t dawn on me to start the inclusion process. He had only just turned two.

For three weeks, I dropped him off at pre-school and then went to my car and cried. I remember being sad dropping off my typically developing daughter at school for the first time, but this was different. 

I often say that parenting a child with Down syndrome is life intensified, the highs are higher, the lows are lower, and the angst that hung between the ignition and me was thick.

But I kept taking him because of what happened on his first day. He walked at school.

He kept walking at school even though he wouldn’t do it at home. Inclusion was working. He was the only non-walker in his class and that was the motivation he needed to start taking his first steps.

Unfortunately, he could only stay at that school for three months because we were moving. So, I would drop him off at school and then research new preschools that would not only take him but wanted him.

I found one. The director was genuinely excited to have their first child with Down syndrome. Anderson had been at his new school for two months when I approached his teacher about his development. She said, “He puts his head down when I try to get him to talk, but at circle time and lunch time, he starts ‘talking’ and answering questions.”

Inclusion was working. It is working. 

It’s not only working for Anderson, but also for those around him. I told his teacher that I might be pulling him from school later this month because we are having our first IEP meeting at our neighborhood public school. She cried.

He’s the only kid in his class who doesn’t talk in sentences and has very few full words. Yet, words aren’t needed to build a friendship. I linger around the gate to catch him laughing and hugging his friends.

Us adults can provide Anderson the tools, but it’s his peers who will motivate him to use them.

Tomorrow we have our first IEP meeting. It’s the first of many in our future and I can feel that thick angst hanging over me again.

I observed the classroom twice, Anderson will be the youngest, by far the smallest and the most behind. I thought about waiting. I thought about keeping him in his environment a little longer.

What if he’s not ready?

But what if he is? I realized I couldn’t be the one to stand in his way.

Inclusion is how he took his first steps, and it will be how he continues to walk into a future that is his own.

Want more articles on inclusion? Read more under advocacy

Some may read this and wonder- why move him if we are happy with where Anderson is at? We could only find a two-day program for Anderson. With public school, he will go five days a week. He will also receive additional speech therapy on top of his private therapy. We will only put him in public school if we get the inclusive placement we want. We are bringing an advocate to our meeting and we are hopeful that we will get the placement and the services we want.

 

 

 

Share:

Facebook
Twitter
Pinterest
LinkedIn

Leave a Comment

Your email address will not be published. Required fields are marked *

Search

Table of Contents

On Key

Related Posts

Glass art Marriages

My husband and I have been through hell and back. More than once. We were broken for a time, yes. But instead of staying that

Speaker Inquiries & Requests

For all media inquiries, please contact

The Gift of the Unexpected​

What if the unexpected is the beginning of becoming your truest self?

Jillian Benfield was living life in the spotlight as a TV journalist, but after receiving a life-altering diagnosis for her unborn son, she realized no camera-ready outfit could dress up her grief. Overcoming this unexpected circumstance wasn’t an option. She would have to undergo it instead. In doing so, she discovered who she was and who God wanted her to become.

In this riveting story filled with grit and grace, Jillian helps you break down the false constructs you’ve built around God and your identity. You won’t avoid your pain, but you’ll learn to feel it, in a healing way. And you’ll discover how your internal transformation leads to external purpose.

No matter what you’re going through, you’re invited to open this gift: The Gift of the Unexpected

The book is available on

Monthly Inspiration delivered straight to your inbox

Let's Be Friends

@jillianbenfieldblog

Book Jillian As A Speaker

Jillian is an inspiring speaker and tailors speeches to fit your group’s needs.