Down syndrome parents, Down syndrome baby, open heart surgery, father’s day story
“Wow, Dads aren’t normally like this,” the nurse was talking about how hands-on Andy was with Anderson during pre-op. It’s not the first time I’ve heard it, especially in a medical setting. I cried the first few times our oldest had to get shots. How would I handle my baby boy having Open-Heart Surgery? Andy. Prayer, faith, family, friends…those too. But Andy, that’s how.
Oh, I know, I’ve written about my husband a lot. I normally get a lot of comments like, “But you’re also amazing!” I’m not trying to discredit myself, I know I balance him out too. But really, honestly, without him, I wouldn’t be who I am today.
I’ve always been a realist. My dreams were always in the confines of sensible boundaries. My Andy, is the eternal optimist. He’s a money-conscience conservative who plays the lottery for crying out loud! I need that in my life.
He keeps me laughing in the darkest of times. In the darkest of times, he still sees the light.
I see him in both of my children. Even though they are only 2 years and 5 months old, I see Andy. I see him in Violet’s over-expressive eyebrows, her tenacious spirit and her love of laughter. I see him in Anderson’s curled lips and his always-happy disposition.
I tend to prepare for the worst. I envision how certain situations may play out in order to prepare myself. But really, when the worst happens (as it has several times over the last year) I’ve been no more prepared than my husband who has kept a cheerful heart in the midst of worry.
He is strong when I am weak. He is hopeful when I am lost. He is the ultimate entertainer and comforter to our children. He can turn a skinned knee into a fit of giggles and help a broken heart become whole.
I have so many dreams for my children. But above all, I hope they learn these things from their dad: work hard, dream big, love fiercely, live passionately and be kind always. Life will throw you curveballs-embrace them. Adapt to whatever comes your way. And above all, do it with a smile.
Anderson Update: We are still in Phoenix. All of his post-op checks look good, he is wire free and is very much himself today. We have a follow-up appointment with the surgeon tomorrow morning. If all goes well, we will be back home in Tucson tomorrow evening!
